Talk by @atjscreams and me is up on #GDoCExpo's youtube!

Listen to how it's *AWESOME* to be #Cripplepunk! (and ideas to accessibility your life *and* make games!) https://www.youtube.com/watch?v=HKHly0Jr11Q

Here's the companion page I made for it with the maaaany links in it https://evel.life/articles/cripplepunk-GDoCExpo2024.html

And hey white folks, throw us a few bucks eh!
- https://ko-fi.com/atonyjerome
- https://ko-fi.com/aldercone

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My nystagmus is so bad today I'm having to lie around with a wet washcloth covering the top half of my face.

The coolness might be helping or maybe it's just having nothing to see is helping. It is So Goddam Boring not being able to look at anything!!!

So much of managing a chronic condition is dealing with how boring it can be though. Especially if you have to rest when you don't want to/when other conditions need other things.

I feel like I've happened across a #DisabilityLifestyle metaphor in real life.

I almost have to admire the honestly of a bus driver who, when I ask him "Does this bus have announcements?", says "you know, I'm not sure!"

And then when I say "Can you let me know when we get to the station?" says "Yeah, if I remember..."

Bus drivers never do this when I ask them (if anyone tells me, it's another passenger overheard and this was before I got on the bus so none of them would have). But they don't usually admit their failings in this area ahead of time!

Got some food from the co-op, had to use the self-service checkout because there weren't any staff around on a sleepy Sunday morning.

I hate self check-out but it went basically okay.

Until it said "please press for a receipt" and gave me a countdown that started at two, so I missed that! So much for getting my expenses back!

I assume there are more than two seconds to request a receipt but with just this big touchscreen it took me a bit to figure out WHERE to press!

Just published the very rough alpha of Corporeal Conisderations!

it's a disability-centered solo TTRPG and character generator to make *realistic* characters!

https://aldercone.itch.io/corporeal-considerations

turns out, there's a lot to consider when you are corporeal! (in fact i need to consider all the inflammatory pain bullshit because I have severe #MEcfs and I spent not enough time resting while making this, oops)

The McDonald's by Salford Crescent has an ableist policy, or at least an ableist staff member, gatekeeping the disabled toilets!

A colleague waited patiently outside the locked toilet door and when a staff member saw her they said "The toilets are upstairs." My colleague said she needed the disabled one, she was waiting because someone was inside. The staff said "No I've locked it" and got hostile. So inappropriate!

My colleague was actually told "You don't look disabled." #DisabilityLifestyle

Lord give me and all my friends the confidence of the two people who pushed on the bus ahead of me and my cane when it arrived, and then took the priority seats at the front of the bus so to get enough room to breathe/stretch our legs I had to walk way to the back.

One of those two people was holding like a pizza box and he put the box on the seat next to him. So that pizza has priority over my disabled ass.

Nothing like sitting down at a bus stop, folding the walking cane, putting it in my backpack, taking out my long cane and unfolding that to make me feel like I'm for sure gonna end up on video as "fake disabled person."

It makes sense to me! I've used the walking cane while going around the city centre and around a museum. Now that I'm waiting for a bus home, I'm mostly done with walking and it becomes more important for the driver and other passengers to know I can't see #DisabilityLifestyle

The gallery's accessible loo has a very fancy door lock. (Which is NOT accessible because I had to read a sign about how to use it!)

But it still doesn't have any hooks or shelf or anywhere to put stuff! Your bag or cane is going to end up on a toilet floor.

Peeing with my backpack on is #disabilityLifestyle

Why are they all like this! Cis abled toilet cubicles have hooks on the doors! What about disabled people makes you think that we don't have MORE shit to cart around than the cisabled?

Just had my eyes tested so now my nystagmus is going to be off the charts for the rest of the day.

I only marginally needed new glasses, basically it was suggested I get them because mine are so beat-up lol. I can only see one more line of letters on the eye chart, but the optician said for me one more line is a big deal.

So I've had to spend three hundred quid on one line! It only had three letters on it and I could only read two of them! That's #DisabilityLifestyle right there.

i don't really do "spoons" anymore. i am just tired. i'm tired. i'm severely extremely painfully tired. Don't have spoons. Dont have knives. No autistic sporks anymore. just have dead fucking horrible exhaustion.

#MEcfs #disability #severeME (ex if you will) #spoonie and a different sort of #DisabilityLifestyle

Sometimes #MEcfs is waiting for a crash to hit. Its like punishment for daring to do anything. Going to take things easy today in case it happens tomorrow from doing things yesterday.
#PwME #DisabilityLifestyle

I typed out a zine for #MEawarenessDay but I don't know if I'll have the ability to actually make it because, wait for it, I have ME

i was planning on leaving the house today to go to my first community event in my new city but i guess instead i'll lay here staring at the wallz instead.

everything hurts and I am fucking tired. fuck this illness. I'm atually pretty fucking sad rn.

coool joints burning already

I just fuckin love working through the goddamn pain xD

(I'm benig sarcastic but also trying to psych myself up because I have no fuckin choice yknow?)

I made life easier for myself, I brought one of my weights down so I can do my exercises against the tension headache if I'm downstairs as well.

It's such a simple thing, I could've done it a year ago, but also I didn't even have the IDEA to take one downstairs to make it easier for myself.

I guess this is #DisabilityLifestyle

What's a small thing you have or could do for yourself that would make something you struggle with immediately easier?